We hope all our members are enjoying the off season and the lovely weather we've been having. We just wanted to share the word about a fundraiser very near and dear to our hearts.
You may have already heard of this appeal as it has been shared widely recently. Bobby is a 7 year old boy that was born with suspected diaplegia cerebral palsy. He is currently unable to walk unaided and uses a walker or wheelchair for mobility.
Bobby has been accepted to St Louis Children's Hospital in the U.S. for life changing Selective Dorsal Rhizotomy (SDR) surgery. The operation used to reduce spasticity (muscle stiffness) in some children with Cerebral Palsy.
Spasticity has an impact on motor function and quality of life. It can affect gait, cause pain and contribute to muscle contractures which can lead to deformities. Nerve fibres running from the muscles to the spinal cord play a major role in maintaining the typical muscle stiffness seen in spasticity. SDR is a surgical procedure performed on these spinal nerve fibres to reduce levels of spasticity in the legs.
SDR is currently not available in Ireland therefore America is the best place to go in order to give Bobby every opportunity to walk unaided in the future.
His family and friends would be extremely grateful for every donation which will pay for Surgery, Travel & ongoing rehab before and after the procedure.
Please see link below to donate whatever you can. At time of writing the fundraiser is just about half way towards it's €150,ooo target.